"Autistic child misdiagnosed again"

My daughter is ten. She is autistic and has suffered from renal complications since birth with significant UTIs. She also has Crohn’s disease.

I took her to A&E for the second time in 2 weeks on instruction of health staff. A doctor, who I have an open complaint about that has been going on for almost a year, was allowed to make clinical decisions surrounding my daughter.

Another doctor was overruled from treating, even though they examined and were in charge of her care, and wanted to treat urgently with antibiotics.

Another medic after speaking to the first doctor, became aggressive towards me. They advised that I needed to stop challenging doctors and go home. I was left shaken and crying and had to take my sick child home, who doesn’t clinically present the way other children do (and this is noted in her records by multiple professionals across multiple departments).

Two days later I was advised that my daughter had a serious UTI that required antibiotics, but she was then left a further 3 days without treatment and in significant pain. My daughter said to me, maybe the pain is in my head if the doctors don’t believe me?

It’s heart breaking how some staff are treating my autistic child and me as her parent. This could have turned into sepsis if left untreated.