"Passed from pillar to post trying to access surgery"

I have mild haemophilia and have been suffering with a hernia for the last couple of years.  

I was referred for an ultrasound in summer last year and then referred to the Pilgrim hospital for a surgical assessment.  I had already spoken with my haemophilia centre and they told me I needed to have the surgery in Lincoln.  When the appointment came through for Boston I phoned up to see whether this was correct and emphasised the need for my surgery to be down at Lincoln so as to ensure appropriate haemophilia care.  I was told that this was the right appointment and that if necessary they would refer me to Lincoln. 

I attended my first surgical assessment at the Pilgrim Hospital in autumn last year (the appointment had been rearranged three times before a date was sorted). The consultant at the Pilgrim agreed I needed surgery and referred me to Lincoln Hospital - for a surgical assessment.  This assessment took place in December last year, I signed the forms for the surgery and was advised that the typical wait was 9 weeks.  

A letter was sent to the haemophilia centre requesting a care plan, I'm unclear why, but there was a delay of several months.  I was eventually called for a haemophilia appointment at the end of April to undertake test of a new clotting treatment.  

This month I was called in again for a third surgical assessment.  

Everyone involved has been helpful, polite and professional but it does strike me the there is a lack of joined care for people with bleeding disorders.  Being called in for multiple appointment for the same thing is annoying for me and wasteful of your resources.  

My hernia isn't urgent but is occasionally painful and has restricted some of the things I can do. I have had to stop visiting the gym as a result and the delays in a resolution are delaying the time before I can back to exercise.